Few thoughts for parents to ponder
We can understand your feelings and apprehensions about your child, who seems to show slower development than usual. It may give you a little solace to know that you are not alone in this situation. There are thousands of parents like you who have children with intellectual disability. Neither you nor your child is to be blamed for his condition. However like any other child you would like to do all that which helps the child in his/her fullest development. Here are few points for assisting you in facilitating the development of your child.
- Your child can learn to become self-dependent in daily living skills e.g. bathing, dressing, self-feeding, attending to toilet needs and helping you in household chores.
- He can learn simple vocational skills and will be able to work and earn to whatever extent possible.
- He can learn better if the tasks can be simplified by breaking them in smaller and simple steps.
- Patience and perseverance on your part will be extremely important if you want to see him/her progress.
- Even a small achievement needs to be appreciated to encourage further learning and initiative.
- He will develop speech. Talk to him, encourage him to speak. Do not give up. Keep working on his language development.
- Constructive play activities are important. Help him develop interest in playing with toys, drawing and coloring, listening to music and watching TV. Play with the child and make learning fun.
- Give him as much success experience as possible. With your own judgment pick up skills, which he is ready to learn, teach him small steps of learning a skill, keep encouraging him to work. Patience and perseverance are key factors in training.
- Take care of his feelings and emotions. You may see certain behaviors in him
which may not easily go. He may keep doing things which you are telling him not to do. Love, Care, firmness and Patience will be able to bring changes in his behavior.
- Your child is just like any other child. He needs to be loved, recognized, praised, disciplined and encouraged to learn various tasks needed for everyday life.
- Others would respect and value your child as much as you value and respect him. We may not be able to change others but we can definitely try to change our own attitudes and behavior.
- You should overcome embarrassment with regard to your child. It is very harmful for you as well as your child.
- Take him with you whenever you are going out. It can be going to market, meeting friends and going to social functions, marriages etc. It is only when you take him in public places that he would learn appropriate social behavior.
- Promote integration of children with disabilities in regular schools if they have facilities.
- It is important to remain engaged with normal life like going out, entertainment, meeting people and attending to your interests and hobbies.
- Do not overburden your other children with your anxieties and problems. Seek their support and explain to them about the importance of their cooperation.
- There is no age bar in learning. Like others, intellectually challenged persons also keep learning throughout their lives.
- Love, firmness, patience & perseverance are key factors in helping the development of your child.
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Some Useful Sites
Action for Autism
Action for Autism was started in 1991 to provide support and services to persons with autism and their families
http://www.autism-india.org
AIKYAs
AIKYAs Vision is to enhance the quality of life of individuals with special needs through education and training to enable them to achieve their fullest potential and integrate them into the mainstream.
http://www.aikya.org
Autism Info.com
.http://www.autism-info.com
The information resource on autism
Association of People with Disability
The Association of People with Disability, APD is an association of people, who believe while an individuals disability may be limiting, working together can help us to overcome these limitations.
http://www.apd-india.org/
Disability India Network
The Disability India Network, website for information related to disability in India, is hosted by the Society for Child Development.
http://www.disabilityindia.org
Disability News and Information Service
DNIS is disability news service, is hosted by National Centre for Promotion of Employment for Disabled People
http://www.dnis.org
Disability News India
http://www.disabilityindia.com/html/dniapril.html#navigation
Disability News India (DNI), is a disability News service dedicated to providing a quality up-to-date information to the Indian Disability
Indian Institute of Cerebral Palsy
http://www.iicpindia.com/
Mobility India
Mobility India promotes mobility for persons with disabilities, especially those in rural areas, through awareness raising, training, improved services, advocacy, research and development.
http://www.mobility-india.org/
National Centre for Promotion of Employment for Disabled People (NCPEDP)
A non-profit voluntary organisation working as an interface between government, industry, international agencies and the voluntary sector.
http://www.ncpedp.org
The National Trust
http://www.thenationaltrust.in/
The National Trust is a statutory body under the Ministry of Social Justice and Empowerment, Government of India, set up under the "National trust for the welfare of persons with Autism, Cerebral Palsy, Mental Retardation And Multiple Disabilities" Act (Act 44 of 1999).
Sense International (India)
Sense International (India) was established in 1997 as the first national non governmental organisation in India to support the development of comprehensive services for deafblind people.
Deafblind Helpline: 1 800 233 7913
http://www.senseintindia.org
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Some Voluntary Organizations
Society for Child Development,
M-63, Lajpat nagar _II
New-Delhi-110024
NIMH Regional Training Centre
Kasturba Niketan, Lajpat Nagar,
New Delhi – 110 024. P.No. 6831012 |
Tamana Special School
D-6, Street,
Vasant Vihar, New Delhi – 110 057. |
AADI( formerly Spastics Society of India)
2, Balbir Saxena Marg, Hauz Khas,
New Delhi – 110 016. |
Delhi Society for the Welfare of the Mentally Retarded Children,
Okhla Centre,
Okhla Marg, New Delhi. www.dswspecialchildren.org |
AAROH,
224, Vasanta Enclave,
New Delhi –110 057. |
Udaan for The Disabled
A-59, Kailash Colony,
New Delhi-110048,
Phone: 41631140 |
Akshay Pratisthan
D-III, Vasant Kunj,
New Delhi –110 070. |
YMCA institute for Special Education
Nizamuddin East,
New Delhi-110013,
Phone: 24699405 |
Balwant Rai Mehta Vidya Bhawan,
Blocks E,G&H,
Masjid Moth, Greater Kailash-III,
New Delhi-110 032 |
Asha Awwa School Handicapped Children
C/o Base Hospital Delhi Cantt.
New Delhi-110010 |
Amar Jyoti Rehabilitation and Research Centre,
Karkardooma, Vikas Marg,
Delhi – 110 092.
E-mail: amarjoti@del2.vsnl.net.in |
The Shriram School
D-3, Street, Vasant Vihar,
Opp. Vasant Vihar Club,
New Delhi - 57 |
National Association for the Blind (Delhi),
Sector-V, R.K.Puram, New Delhi –110 022. |
Action For Autism
Sector-5 Jasola Institutional Area,
Behind Sai Niketan,
New Delhi-110025,
Tel: 30964730 |
Association for National Brotherhood for Social Welfare,
21-22, New Rothak Road,
New Delhi –110 005. |
Deepalaya
S-69, Snjay Colony,
Okhala Phase-II,
New Delhi-110019 |
Federation For The Welfare of the Mentally Retarded
Shaheed Jeet Singh Marg Spl.
Institutional Area,
New Delhi-110067 |
The Educare Charitable Trust
M-2, Hauz Khas,
New Delhi-110016,
Ph:6565061 |
Jeevan Jyoti
Mother Teresa Home,
Jangpura B, Mathura Road,
New Delhi-110014 |
Jan Madhyam
147, Aya Nagar Phase-5,
New Delhi. |
Sansckriti School
San Marti Marg,
Chanakyapuri,
New Delhi-110021 |
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